Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

http://networkedblogs.com/WxGPB

Norm (Kunc, not me) was there, and his “Euthanasia Blues” provided a rollicking start.

My wonky part was described this way in the program:  Medical discrimination against people with disabilities, sometimes resulting in death through the nonconsensual withholding of life sustaining treatment, has been a longstanding and increasing concern among disability advocates, especially under the threat of healthcare budget cuts and rationing. Over the last two decades, health care decisions laws have been amended to increase the likelihood that people will sign advance directives and POLST forms refusing life sustaining treatment, and that surrogate decision makers will refuse treatment on behalf of relatives without advance directives. There are also concerns about organ transplant professionals denying transplant eligibility based on disability, as well as pushing for withdrawal of life support from disabled people in order to harvest their organs for others. Most states have “futile care” laws and policies allowing physicians to withhold life-sustaining treatment over the expressed objection of the individual or their surrogate. Evidence of passive euthanasia in violation of the civil rights of people with disabilities, such as that described in the National Disability Rights Network report, “Devaluing People with Disabilities: Medical Procedures that Violate Civil Rights” (May 2012), will be explored, as well as potential avenues for addressing these violations.