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Going to the doctor’s for anyone can be at best a dull experience and at worst — a traumatic one. Since being diagnosed with Ehlers-Danlos syndrome (EDS) in 2003, Gehrig’s been navigating her experience with illness on social media with humor, lip gloss, and her chin held high.
Ehlers Danlos Syndrome is a genetic connective tissue disorder in which bodies can’t regenerate collagen. This results in frequent joint dislocations, organ rupture, and other issues that can lead to frequent hospital visits: being sick becomes a regular thing. For Gehrig, it’s a daily dilemma.
“I want everyone who goes into a doctors office to feel empowered, and that they can be themselves,” she told BuzzFeed Life. “There’s nothing about being disabled that I should be ashamed of. Taking care of yourself is really important.”