A mother described the uncertainty of raising an infant with CHARGE syndrome. A teenager who is deafblind shared his dream of working in the community. A woman explained how she provides life-changing technology to people like herself who are deafblind.
Each story was unique, but all three emphasized the importance of state-funded services and programs for people who are deafblind and their families.
"That’s why we’re here today," said Kerry Thompson, Information and Program Coordinator for the Disability Rights Fund. "We need to advocate to make sure everyone has these opportunities."
Students in the Deafblind Program at Perkins School for the Blind joined several dozen members of the deafblind community and their interpreters for the event, held March 30 at the Massachusetts State House. They were joined by several state representatives and service providers from organizations like the Deafblind Community Access Network (DBCAN).