As a friend of mine describes it, "When professionals Attack"....
Here is a selection of resources and tools that are aimed at helping you work with the people you may encounter as a result of your child's condition.
Our Family, My Life
The Our Family, My Life resource is a family-held or young person held record, which brings together all relevant information about a child’s or young person’s needs and services supporting the child/young person and family. Our Family, My Life is for families with children who need help and support or for young people who would like to take control of their support for themselves
MAPIT
MAPIT enables different groups, including schools and service users to review current arrangements, identify service development priorities and track progress over time. The evidence that is collected as it is being used is relevant for lots of other planning, audit and inspection purposes.
Developmental journals
The Early Support Developmental Journals are designed to help families, teachers and other practitioners better support development especially where children or young people have special educational needs and disabilities.
The Council for Disabled Children has also produced an Information resource about people you might meet during the process of diagnosis and during ongoing support and treatment. You might also find their list of useful contacts and organisations helpful.
You might have heard of one page profiles. These are documents that tell people about your child, or yourself in one side of paper. It usually has three sections: what others appreciate and enjoy about the person, what they like to do (from their perspective) and how best to support them. You can read more about them here and about how they can be useful in developing an approach that puts you and your child at the centre of any planning.